{"id":171,"date":"2023-03-14T05:02:07","date_gmt":"2023-03-14T10:02:07","guid":{"rendered":"https:\/\/coco66.com\/the-race-against-time-helping-henry-receive-genetic-treatment-for-ahc\/"},"modified":"2023-03-14T05:02:07","modified_gmt":"2023-03-14T10:02:07","slug":"the-race-against-time-helping-henry-receive-genetic-treatment-for-ahc","status":"publish","type":"post","link":"https:\/\/coco66.com\/the-race-against-time-helping-henry-receive-genetic-treatment-for-ahc\/","title":{"rendered":"The Race Against Time: Helping Henry Receive Genetic Treatment for AHC"},"content":{"rendered":"<p>Dr Christelle Achkar, Henry\u2019s neurologist, has spoken to CNN, expressing her inability to provide the infant with a better option to try and prevent him from having more seizures or episodes.<sup id=\"cite_ref1-0\" class=\"reference\"><a href=\"#cite_note1-0\">[0]<\/a><\/sup> Henry is one of those children who have an increased chance of passing away too soon because of their medical condition; if they are fortunate enough to stay alive, there is a fear of a severe decline in their health.<sup id=\"cite_ref1-0\" class=\"reference\"><a href=\"#cite_note1-0\">[0]<\/a><\/sup> Mary and Anthony, Henry\u2019s parents, have started the non-profit organisation \u201cFor Henry\u201d to raise $3 million so that the child can receive a genetic treatment, which if turns out to be successful will make the infant the case of AHC to be treated and will also open the path for others suffering from the similar disorder to receive treatment.<sup id=\"cite_ref1-0\" class=\"reference\"><a href=\"#cite_note1-0\">[0]<\/a><\/sup><\/p>\n<p>The family is racing against the clock to ensure that Henry gets the treatment before his brain is permanently damaged during one of his seizures.<sup id=\"cite_ref1-0\" class=\"reference\"><a href=\"#cite_note1-0\">[0]<\/a><\/sup> During these spells, the infant stops breathing on his own \u2014 sometimes for up to 15 minutes \u2014 or experiences paralysis that can last for days at a time. <\/p>\n<p>This is Henry\u2019s only chance.<\/p>\n<p><span id=\"cite_note1-0\">0. <\/span>&#8220;Family battles toddler`s neurological disorder that turns infants into `human time bombs`&#8221; WION, 13 Mar. 2023, <a target=\"_blank\" href=\"https:\/\/www.wionews.com\/world\/family-battles-toddlers-neurological-disorder-that-turns-infants-into-human-time-bombs-571725\" rel=\"noopener nofollow\">https:\/\/www.wionews.com\/world\/family-battles-toddlers-neurological-disorder-that-turns-infants-into-human-time-bombs-571725<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Dr Christelle Achkar, Henry\u2019s neurologist, has spoken to CNN, expressing her inability to provide the infant with a better option to try and prevent him from having more seizures or episodes.[0] Henry is one of those children who have an increased chance of passing away too soon because of their medical condition; if they are [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":170,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3],"tags":[],"_links":{"self":[{"href":"https:\/\/coco66.com\/wp-json\/wp\/v2\/posts\/171"}],"collection":[{"href":"https:\/\/coco66.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/coco66.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/coco66.com\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/coco66.com\/wp-json\/wp\/v2\/comments?post=171"}],"version-history":[{"count":1,"href":"https:\/\/coco66.com\/wp-json\/wp\/v2\/posts\/171\/revisions"}],"predecessor-version":[{"id":172,"href":"https:\/\/coco66.com\/wp-json\/wp\/v2\/posts\/171\/revisions\/172"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/coco66.com\/wp-json\/wp\/v2\/media\/170"}],"wp:attachment":[{"href":"https:\/\/coco66.com\/wp-json\/wp\/v2\/media?parent=171"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/coco66.com\/wp-json\/wp\/v2\/categories?post=171"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/coco66.com\/wp-json\/wp\/v2\/tags?post=171"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}